what's happening now ?

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​"Your everyday shopping can help make a difference, at no additional cost to you!  When you shop at smile.amazon.com, or in the Amazon app with AmazonSmile turned on within Settings, you'll find the same products and same low prices as the Amazon you already know - plus, they donate a portion of your purchases to your chosen charity.  You can select us as your AmazonSmile charity by visiting: smile.amazon.com/ch/47-4699142
​#amazonsmilecharity #amazonsmiledonates"

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BTSSCYCLE Community Impact 

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"Once I heard that going through the difficulties in life is better when you have a friend to count on. And I couldn't agree more. 
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I met Dr. Scott a few years ago in a Facebook Group Page for Parents of Children with SCD and since then we have been in touch. Quite often we exchanged messages and talked about our challenges in daily life with our children. I truly appreciated that not only she brings in her knowledge but also because she is a mother she could understand my worries and fears. 
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Three years ago my family decided to relocate to TN and I remember messaging her about it and she was so happy for us. We decided that Memphis would be our choice and moved in. About 7 months later and after trying so hard make things work locally with our son's care we had to move his care to Vanderbilt. It made my heart so warm when I told her we would be going there for care and she asked me if she could go to see us and we finally met in person.
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Since then it has been great to know that not only I had a good friend but we could also count with the help and support of BTSSCYCLE Foundation. 
I just love the work and support the Foundation gives to our community  in so many ways. And I am so proud of Dr. Scott for all she has accomplished.
I have no words to Thank you enough. And pray that you fly high!

​With Love,
Aline Sant"

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WHAT IS ​Sickle Cell Disease (SCD) ? 

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SICKLE CELL FACTS.

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What Causes
Sickle Cell Disease

GENETICS. 
SCD is a genetic condition that is present at birth. It is inherited when a child receives two sickle cell genes—one from each parent.

Symptoms and Treatment 


People with sickle cell disease can start to have signs of the disease during the first year of life, usually around 5 months of age. Pain is the hallmark sign of sickle cell disease.
​Symptoms and complications of SCD are different for each person and can range from mild to severe. 

Cure
Is There A Cure

Yes! A blood or marrow transplant  is the only known cure for SCD. Bone marrow is a soft, fatty tissue inside the center of the bones where blood cells are made. A bone marrow or stem cell transplant is a procedure that takes healthy cells that form blood from one person—the donor—and puts them into someone whose bone marrow is not working properly.

Sickle Cell Trait
Sickle cell trait is an inherited blood disorder that affects 1 million to 3 million Americans and 8 to 10 percent of African Americans. Sickle cell trait can also affect Hispanics, South Asians, Caucasians from southern Europe, and people from Middle Eastern countries. More than 100 million people worldwide have sickle cell trait.

Genetic Blood Disorder
Unlike sickle cell disease, a serious illness in which patients have two genes that cause the production of abnormal hemoglobin (the substance in red blood cells that helps carry oxygen), individuals with sickle cell trait carry only one defective gene, have normal functioning hemoglobin and typically live normal lives.

Newborn Testing
All newborns in the United States are now tested for sickle cell disease and sickle cell trait. Sickle cell disease can be identified before birth by testing a sample of amniotic fluid or tissue from the placenta. People who carry the sickle cell gene can seek genetic counseling before pregnancy to discuss options.

​DIAGNOSIS.

SCT is diagnosed with a simple blood test. People at risk of having SCT can talk with a doctor or health clinic about getting this test.

COMPLICATIONS.

Most people with SCT do not have any symptoms of SCD, although—in rare cases—people with SCT might experience complications of SCD, such as pain crises.